WP22/10: How many families are impacted by chronic conditions?

Designation

Working Paper 22/10

Proposed authors

Lisa Underwood
Ofa Dewes
Andrew Sporle
Hamish Jamieson
Martin O’Flaherty
Nick Bowden
Barry Milne

Concept

Chronic diseases such as cancer, cardiovascular disease, diabetes, mental health and obesity have a direct effect mainly on the middle and later life-course, but with impacts seen increasingly at younger ages. The indirect effect of chronic diseases on the wider family and whānau has been less well-studied, and is likely to have impacts across the entire life-course. This paper will present descriptive data on the families of individuals experiencing one of ten chronic conditions:

  • Coronary Heart Disease
  • Gout
  • Chronic Obstructive Pulmonary Disease
  • Diabetes
  • Cancer
  • Traumatic Brain Injury
  • Stroke
  • Acute Myocardial Infarction
  • Dementia
  • Mental Health Disorder.

Four questions will be answered:

  1. How many families include a family member with a chronic condition (in total and by chronic condition type)?
  2. How many families include a family member with multi-morbid chronic conditions?
  3. How many families include more than one family member with a chronic condition?
  4. What is the socio-demographic profile of families and family members impacted by chronic conditions in the family?

Data sources

We will use the following tables from the Integrated Data Infrastructure (IDI):

  • Person overseas spell
  • Publicly funded hospital discharges
  • National Non-Admitted Patient Collection (NNAPAC)
  • Programme for the Integration of Mental Health Data (PRIMHD)
  • interRAI
  • Pharmaceutical data
  • Laboratory claims data
  • Cancer registrations
  • Mortality data
  • 2018 Census
  • 2013 Census
  • Tax data

Associated projects