NOURISH-EDS Study

Taking part in this study involves two parts:

Part 1: Online survey

• Complete an online survey about your eating behaviours, gut symptoms, and overall health (approx 20–30 minutes to complete).

Part 2: Three-day food and symptom record

• Record the food and drinks you consume over three days.
• Record any gut symptoms you experience during this time.

Participants will receive a $40 voucher as a thank you for taking part.

To participate, you must:

• be aged 16 years or older
• have a diagnosis of hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD).

Who may not be eligible?

You may not be able to take part if you:

• rely on tube feeding for all of your nutrition needs
• are pregnant or breastfeeding.

Unfortunately, we are only able to include people with a confirmed diagnosis of hEDS or HSD. People with a suspected diagnosis are not eligible at this stage.

For more information about this study or to take part, please contact:

Dr Nicola Gillies
Lead Researcher
Email: n.gillies@auckland.ac.nz

Aeson Chappell
Student Researcher
Email: mcha769@aucklanduni.ac.nz

If you are interested in taking part, please complete the screening questionnaire below.