Healthy Ageing in Adults with cerebal palsy
This research will explore and understand the ageing experience of adults with hōkai nukurangi or cerebral palsy (CP) living in New Zealand and Australia.
Why is this study important?
Adults with CP experience unique and ongoing physical health care needs across their life, however there is often a lack of information and services available to support adults with CP in navigating their evolving physical healthcare needs. It is important to understand the health needs of adults with CP so that we can help others with CP learn how aging may shape their future, and also to help health professionals learn how to best provide health advice and care.
In addition to being physically healthy, adults with CP also value holistic wellbeing in their life that includes mental health and social wellbeing. We currently know little about what it is like to live through adulthood with CP and what it means to age well.
What will I be asked to do?
Participation will involve completing a simple questionnaire (~15-20 minutes) and an interview (~1 hour). Interviews can be adapted to suit your communication needs. The questionnaire asks general information about you and your health. The interview will be a discussion about your experiences so far, your needs and priorities for ageing well and what healthy ageing means to you.
Who can take part?
You can take part in this study if you are:
- An adult 30 years or older with cerebral palsy or hōkai nukurangi
- Live permanently in either New Zealand or Australia (for at least 7 years)
- Have capacity to participate in the study activities either by yourself or with support.
How can I find out more?
To find out more, or to participate, please contact Woroud Alzaher: woroud.alzaher@auckland.ac.nz
If you'd like to participate in the study, complete the questionnaire at the link below.
This study has been approved by the Northern A Health and Disability Ethics Committee on 12 Feb 2024 for 3 years (reference 18972).